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Wednesday, 18 April 2012

Carer, Coo and Hospital too...

Hi guys, it's been another difficult week I'm afraid!
When are we gonna catch a lucky break!

Still saddened by our wee dog leaving us last week and a seizure increase as Coo's been struggling, we set off to an appointment with Coo's Neuro.He's a really nice guy, he's always friendly and treats Coo kindly  so...what was the problem?

Well, it seems, we've reached the end of the road with AED's (anti-epilepsy drugs) yet again and while it's not a new area for us - we were at this point many years ago - it's still a blow.
So what do you do now?
Well, you just manage, kinda carry on regardless and hope some new meds come on the scene.

I think, if I'm honest, we both thought this was coming as when Coo re-entered the system six years ago there were four new drugs on the market and he's tried them all so it shouldn't have been too much of a surprise - should it?
I think, maybe, you always hope there's something else to try and who knows maybe in a few years, something new will pop out of the wood-work!

The meds aside, what I did find difficult, was the Neuro discussing SUDEP -  it's when a sudden unexplained death happens in Epilpesy.
Now, don't get me wrong, we both know Coo's at risk from lots of problems - his horrible time with Aspiration Pneumonia, left us with no illussions on how quickly things can deteriorate. We tend not to think about this side of things, I guess it's a coping mechanism especially when things are tough.

I think the Neuro. brought home, just how tenuous things really are and I suppose while we were still trying out other meds, the issue of a SUDEP didn't really need to be raised and now we're at the end of the road again, well, I guess it had to be discussed.

Coo didn't even aknowledge the situation at all!
He just let it slide!
Although, we did discuss it over a cuppa later that day and we've both decided...

 If, and I mean if, the worst were to happen, well, we've no regrets, we've had a good life together and lot's of love both between and all around us - so in the full scheme of things, we're lucky aren't we!

So...I'm ending today with some sunnier thoughts...
We've decided. We 're not going to dwell on things.
If new drugs come, then fine and if not? Well, we'll do what we always do...keep on going together, what else! lol

We're doing ok and I hope you are too!
Maz x


your highland buddy said...

I am sorry things are so tough for you and Coo at the moment

And remember friends are like stars, you don't need to see them to know they are there.

You know there are people to lean on, even those far away, so lean away

Maz said...

Thanks -it's always a bit of a strain when you get a difficult diagnosis isn't it.
Maz x

FEDO said...

Coffie break.He2