I'm still hanging on in there - I seldom type now as the Rheumatoid Arthritis takes over but I'm still in there alive kicking and still caring!
Caring has increased, for us both...
Steadily my rheumatoid issues have taken over and Coo is helping me with buttons, fasteners, knobs, all the fiddly things and...well you get the picture and I'm still managing around all the seizure activity - it is what it is but I sometimes wonder just who is caring for who!
Health and Social Care...
HSCP (Health and Social Care Partnership) on carers and short breaks and the new carers support plan and as people find out more about it and things are agreed with carers - isn't it just great that the carer rep is able to be fully involved as SDS (Self Directed Support) is already in place - isn't that how it should be everywhere? I know it isn't but it should be!
I still feel it's only by truly working together we can really change things for carers and I guess that's why I try to keep my pledge and make sure carers voices are heard!