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Thursday, 22 September 2011

Back in Anti-bio-land...

Hi Guys, Coo's back on the anti-biotics...again!

The not so lovely cold that's been kicking around his system, has now made it's way into his lungs. He's got yet another chest infection and we all know what that means...a temperature and lot's more seizures - poor coo!

Thank goodness Looby's been here today as I had another meeting and really wanted to go! It was on our campaign about supporting local community centres here in Ayrshire.

Our council is thinking about closing them and the group I'm involved with are trying to make them think again and I really hope they do!

Sometimes, I think do I really have time for everything, caring, campaigning and the other issues disability brings with it and then I think, can I really afford not to!
From somewhere the strength comes and the fight goes on!

Upward and onward!
Maz x

Wednesday, 21 September 2011

More on Personalisation...

Hi Guys, remember a few months ago, I posted saying, I was working with my Local Authority?
Well, I've been at it again! lol

The Council asked for Carers and Service users to come along and offer their input on the new strategy for social care and we did!
It was an interested afternoon.
Around our table were Carers for people with physical disabilities, mental health issues, elderly and children so it was quite a good cross-section.

I seemed to be in the minority as a Carer whose family already had a Direct Payment up and running so I was happy to share my experience of just how it works for us. I explained that I now wouldn't be without it and don't know how I managed before!

I'm glad things have moved on.
At least disabled people and their Carers are now asked what services they require and don't just have to accept what is offered in a take it or leave it kind of way!

It's really great more people now feel able to stand up for themselves and push for better services as in the end, this can only benefit everyone!

I say Power to the people! LOL
Maz x

Monday, 19 September 2011

Hard hat time again...

Hi guys, I've been down with a cold this last week and worse of all I have now shared it with Coo and we all know what that means...lot's and lot's of seizures!
I've had to dig out that hard hat and flak jacket again!

I think, we're over the worst now and Looby's been a Godsend!

I'm so glad we have our Direct Payment as before, at times like these, I always felt torn and troubled asking her for help but as Looby's our P.A. too and it's her job, it's now a lot easier to manange. She can usually move things around and come stay for a bit and that makes all the difference!

I hope things improve soon and until they do...

I'm keeping cosy warm and spoiling us both with lot's of lovely hot-chocolate!

I hope you're keeping comfy and cosy where you are too!
Maz x

Friday, 9 September 2011

Back from Respite...

Hi guys, I'm back from respite!
Things went well, Coo was no worse than usual and Looby coped just fine and best of all, I had a good few days away with my mum in...
Blackpool! Woo hoo!

I had been a bit unsettled before I left as Coo had some real problems last week but I'm pleased to say things went well and's all good! lol

The famous tower has a revamp!
Now just how cool does this look?

Impressed? I sure was as I tentatively stepped out! It's a very surreal feeling, I got a bit of a heart flutter standing right out there in the clouds! It's kinda un-nerving but certainly an exciting experience that's for sure - wow what a rush! lol

Respite, what does it mean for me?
Well, it's really a time to switch off from Carer responsibilities and just chill, please myself and generally enjoy the freedoms most people kinda take for granted!

I'm so greatful for the Direct Payment that makes it possible for my few precious days away and I guess it's helps that I know Coo's in good hands with Looby. It makes all the difference in the world and means I can relax and get a real benefit too!

You know what?
I love that little bit of me time, It reminds me to look after me too and with that thought...
Here's some Blackpool rock just for you!

Please remember to look after you too!
Maz x

Thursday, 1 September 2011


Hi guys, things are difficult again here. Coo's poorly, his seizure level is up and he's either sleepy or has major mood swings and sadly lot's of Carers will know exactly what I mean!

I've been looking forward to some respite for ages.
A few days away with my mum (as usual!) and it's come around this week of all weeks!
Usually before a respite trip, I'm excited all week long and busy sorting things out for the trip. Maybe buying a few wee bits too, you know how it is but this week's been very different.
Coo's seizures and moods and the way they've been, well, I'm kinda struggling.
On one hand, I feel, thank God, just stuff everything else, I need the break! but on the other hand I'm thinking, with all the turmoil in the house around Coo's moods, it's not been pleasant planning the trip this time around at all so will I get the happy carefree time away I usually do? I hope so!

I've given Coo the meds he uses when moods are just too stressful to cope with and I'm kinda hoping things settle a bit before I leave in the morning and if not? Well, I'm confident Looby will cope and we'll just have to deal with it when I get back!

I hope things are more settled where you are.
Maz x