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Tuesday, 12 May 2015

On the up, pain probs and bike rides too...

Hi guys, Hope you're well,
We've been taking it a wee bit easier this week and I guess it's been a mixture of the post holiday blues and my own pain levels this time around but on the plus side -  Coo's back on the up and...thank goodness for that! lol

My own health issues have continued. 
I'm ok but I've had some news on that front.
 It seems, all the issues at Christmas are stemming from a neck problem...who knew?
It looks like I have degenerative discs, nerve damage and neuropathic pain so pain meds and physio seem to be in order.
I'm not finding this new development at all easy - Turns out I'm a rubbish patient! I have all the patience in the world for Coo when he's poorly but markedly less so for myself, I just keep pushing myself a bit too far, I wonder if that's a Carer failing in general? Anyways, I started the pain meds a couple of weeks ago and this week, thankfully, they are working!

All in all, with Coo back on the up and my pain levels down (what a see-saw!), things have been pretty positive here this week!
The weather improved the other day too, the sun even came out and we managed a bike ride...woo hoo!
What a wheeze it was too! It's so good getting back out in the fresh air for a wee while, the feeling of freedom is really quite addictive - something that feels this much fun, shouldn't be good for you! lol

The first time out this season and we were both pretty much fine afterwards a good 'un! lol

If you get the chance, give cycling a go, it sure is fun!

Remember to take care of you!
Maz x

Sunday, 3 May 2015

Carers, Respite and Roller-coasters too...

Hi guys, and happy days - We've been away on Respite!

With Coo being so poorly, we didn't go far, just a little ways up the coast to Wemyss Bay...
It sure is a pretty place isn't it!

We always find it so relaxing and peaceful and the change of scene and pace too has done us both no end of good!
We nearly didn't even go! Coo wasn't doing at all well, he had an increase in seizures, was struggling and it was a bit touch and go but in the end we decided to 'just go for it' -I'm so glad we did!

The weather was glorious, the views spectacular and we really had such a great time!
Looby came mid-week with the grand-babies, I got some much needed sleep and as a bonus, we got to spend some quality time with our wee ones too a goodun! lol

Quickly back to reality though...
Coo's blood results are not so good this time and we're back on that dreaded AED (Anti Epilepsy Drug), roller-coaster ride again!

You know the one, too much drugs in the bloodstream yet more seizures and too little? Pretty much the same effect!

We're having a think about it for a few days and then we must decide if we're going to stick, hope things settle or... begin adjusting the doses yet again!

I'm glad we got away for a bit and it's thanks to our SDS (Self Directed Support) care package, that we are able to take off for a few days when things are difficult. It's just so flexible and has made such a difference.
With SDS, I honestly feel the quality of life has greatly improved for us both.

I hope more Carers have a chance to try SDS and find a support system that works for them!
Stay strong,
Maz x