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Wednesday, 13 July 2016

Carer and Cared for Roller-coaster ride, Royal adventures too...

Hi guys it's been a busy month since I last blogged and there's been some real highs and lows...
It's a bit like that Carer roller-coaster ride again...
Me...
My own health is still problematic at best, thank God we have our SDS - (Self Directed Support) budget in place! I've been using it for additional care hours to keep us ticking along while things are so unsettled and it seems at the moment I've more appointments than Coo and that's a big shift around for us!
Okay, the Rheumatoid Arthritis is a little bit better, well the swelling is still going down but the pain is still pretty much on the high side and I've developed some nasty side effects from the drugs so...things are changing again.
I'm moving from tablets to injections and I'm not quite sure how I feel about that and...to cap it all our beloved GP is retiring soon.
God knows how I feel about that too - he's got us through numerous medical muddles over the last twenty-five years and with a hug and a smile too!

I know there are other good doctors in our practice and we will be fine but we will miss him so much, I'm tearing up just thinking about it all!


Coo...
Meanwhile, Coo's taken a bit of a battering too this month, his drug level spiked way out the safe zone and things were dire back up around 20 odd seizures a night and totally shattered and struggling all the time. AEDs (Anti Epilepsy Drugs) reduced a little...effect? A lot! Things quickly spun out of control again and we were in a real struggle we couldn't find the middle ground - time for the Neuro!
He's a cool guy, very patient, listens to Coo and sorts a plan of action - we're still in the middle of this latest AED see-saw but I'm hopeful we're coming back on the up!

They've been pretty low points this month so time for a high point...
We've been Travelodge-ing it again! lol
We were invited to the Queen's Garden Party in Edinburgh last week so we were Edinburgh bound for a few days and here we both are at Holyrood Palace...

It was a bit touch and go, if we'd make it and a bit of a struggle getting things all sorted but we did and we had such a lovely time.
The rain stayed off, the food was tasty and the whole setting was stunning!
We managed a wee visit to Gladstone's Land on the Royal Mile and The Georgian House too - in fact we had a brilliant wee break away in our Capital City - I'm so glad we got to go as it's given us both a bit of a lift!

Stay strong friends, let's hope for some more settled times too!
(((hugs)))
Maz x