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Sunday, 24 March 2013

Back with a bump...

Hi guys, I'm afraid, it's been a bit of a bumpy ride this week.

In fact, caring sure is a bit of a roller-coaster ride at times isn't it! Well, after the ups of last week and my big night out, we've hit the down-side again - Coo's blood levels are all over the place!
Our doctor called with the blood results and...that's never a good sign! Yet again the levels are too high. They're way out of the safe range so I guess that's why we have yet another seizure increase and Coo keeps continually falling asleep!

*The medical advice?
Well, we could reduce the meds and hope things settle a little but as Coo's now developed a sniffle that's not really a good idea, any infection will create even more drug level problems!
We've talked it out and decided to leave the meds as they are and sit it out for another few days, hopefully either the cold will come to a head and we'll cope with that or the drug levels will even out and Coo will start to improve all on his own - stranger things have happened!
It's such a careful balancing act with the meds now! I doubt, poly-drug therapy is ever easy! I do know, it's so very difficult for us though, especially, when we need to adjust the doses. Each little change risks a huge spiral out of control again but...
Positive thoughts - Let's hope it doesn't come to that this time!

Stay strong!
I hope you're having a more settled time where you are!
Maz x

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