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Sunday, 3 May 2015

Carers, Respite and Roller-coasters too...

Hi guys, and happy days - We've been away on Respite!

With Coo being so poorly, we didn't go far, just a little ways up the coast to Wemyss Bay...
It sure is a pretty place isn't it!

We always find it so relaxing and peaceful and the change of scene and pace too has done us both no end of good!
We nearly didn't even go! Coo wasn't doing at all well, he had an increase in seizures, was struggling and it was a bit touch and go but in the end we decided to 'just go for it' -I'm so glad we did!

The weather was glorious, the views spectacular and we really had such a great time!
Looby came mid-week with the grand-babies, I got some much needed sleep and as a bonus, we got to spend some quality time with our wee ones too a goodun! lol

Quickly back to reality though...
Coo's blood results are not so good this time and we're back on that dreaded AED (Anti Epilepsy Drug), roller-coaster ride again!

You know the one, too much drugs in the bloodstream yet more seizures and too little? Pretty much the same effect!

We're having a think about it for a few days and then we must decide if we're going to stick, hope things settle or... begin adjusting the doses yet again!

I'm glad we got away for a bit and it's thanks to our SDS (Self Directed Support) care package, that we are able to take off for a few days when things are difficult. It's just so flexible and has made such a difference.
With SDS, I honestly feel the quality of life has greatly improved for us both.

I hope more Carers have a chance to try SDS and find a support system that works for them!
Stay strong,
Maz x

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