So disappointed...

I'm gutted!

I just came back from a hospital to see the Orthopedic Surgeon and it looks like he can't help me.
I have had pain in my shoulder for 3 years now.
The first year some hydrocortisone jabs kept it at bay but since then it's been real bad!

In a way it's a good thing my x-rays were normal but it's so painful all the time I'm really struggling now.
The Ortho say's without knowing what exactly the problem is, he doesn't want to 'open it up'.

Where does that leave me...

Well, he's going to refer me to his boss now and see what he thinks so I guess it's a case of just keep taking the pain killers and cranking up the TENS machine for now.

You know, with all this electricity running through my body all the time, it wouldn't surprise me if one of these days, I woke up with a curly perm LOL !



Ok, maybe the orange is stretching it a bit!!LOL



Coo's still struggling on.
His meds have been reduced as he was toxic so his seizures are up again.
He's worried about me too, which isn't helping things and to cap it all it's blooming raining again!

Hey-ho apart from all that we're both hunky-dory!

I'm reminded again of Granny, who always said...
It's a good life if you don't weary!




I think it could be lucky white heather time!


Keep thinking happy thoughs(or taking the pills)!
(((hugs)))
maz x

Well it did rain....

It rained and it rained and it rained! LOL

I'm glad in the end I did decide to put on my wellies after all!

You know something though?
All that rain didn't dampen the spirits, in the words of Wallace and Gromit, it was a grand day out!

It always amazes me how people less fortunate like our wee group, who are all addition/special needs, a bit of a motley crew with an assortment of disabilities! keep so cheerful.

It didn't really rain on our parade, well it did but a multi-coloured assortment of silly rain poncho's and wellie boots and a group with no particularly cares on fashion sense made for a FAB day out! LOL

I'm glad I pushed myself sore shoulder and all and went ahead with this as a dozen people who really deserve a good fun and free outing had a ball! LOL

We were rewarded in the end as in the afternoon the sun came out and we all got to sip cuppa's and coffees on the beach - what a blast!

Bags of chips all around and a ferry ride back home...Fun? it sure was!

maz x

Hey ho...

Hi Guys, how goes it?

Things are pretty much the same-o same-o here, Coo's still struggling with seizures but we're kinda resigned to the whole thing and now take each day as it comes!

My shoulder is still sore, even after the hospital visit but I'm hopeful they can do something with it so we'll say it's a work in progress!

Our summer seems to be over here!
All week we've had the wellies and rain jackets out but funnily enough it's still pretty mild, so we're counting our blessings - it could be worse you know!

Our wee club for special needs adults, is off on a day trip tomorrow to the Isle of Arran for the Brodick Highland Games and both Coo and I, are looking forward to the ferry trip as it's been ages since we visited the Islands!

Mind you, the weather forcast doesn't sound too promising but I'm sure it'll be great fun!




Only one thing now...where did I stick those wellies!

maz x

Hoping for sunshine...

Hi everyone!

Things have been a bit difficult for Coo recently, his meds are up and down like a yo-yo but we're still hanging on in there and paddling hard!

At last my appointment is nearing, so I'll be off to Hospital on Thursday to get that troublesome shoulder examined...ouch!

I've been lucky with the good old N.H.S.as it's only taken 3 months to secure an appointment and I'm quite relieved really as I'd been told it could take 6 - 9 months!

I must say, I'm not looking forward to going at all as each time I've visited my GP, he's reduced me to tears with his poking and prodding of it!

Incidently, what's your weather been like?

Here, it's been wet and windy!



June was the worst it's been in years.

I'm not at all sure about this Global Warming milarky as it's even colder and wetter here than ever!

Never mind, Let's hope for some sunshine soon.

Take care,

maz x

Back from our holiday...

Hi everyone we're back!

Blackpool was good fun and it only rained one day out of the five so that was a bit of a result!
Guess what?
It was warm enough for one of these!!

I'm glad we went as Coo kept relatively well while we were away...another bonus!

Things are maybe looking up again, I do hope so.

The highlight of the week was a visit to the Blackpool Zoo, honestly it's a brilliant day out!

They've got the lot including a Dinosaur Safari no less!

Coo was up and exploring the town all day so he was really tired in the evenings.



He fell asleep at 7 p.m. and looked a bit like this...




He got most annoyed with himself and said, for me, it must have been like going on holiday with our kids when they were small, when you had to be back in your room early!

We had a laugh about it when I said, we were there to chillout a bit and get some rest too!

We have come back stronger and ready to cope again.

All in all, we both had a real good time.

maz x

Health, hassles & holidays...

Hi all, things have been a bit difficult this last few weeks as Coo's been having more seizures.

His meds have been on that dreaded drug see-saw...again.
Coo's blood test 2 weeks ago revealed his meds were too low for no reason we could find, so we agreed to up the dose a little.

This has been a bit of a mistake as Coo has slept on and off all day, every day, his seizure activity came back up to 20-30 and he felt really poorly.

We've decided to cut the dose yet again and see what happens - up and down, up and down.
Poor Coo, I'm beginning to feel the see-saw effect myself!!

I'm hoping things do settle a bit as we're going away for a few days!
Thinking things would surely be more settled by now, last January,I booked a few days away.
I was so optomistic things would be ok by the Summer time and Coo'd be well enough and raring to go!

But do you know what?

I'm not really worried about it anymore.
Things will be what they'll be and we'll just pootle on as before!
It's now been a real long time since Coo was well and it's amazing how you just 'cope' don't you!

You stress and worry, think how will I manage? and sure as anything, the sun rises to a new day and so do you!

Maybe Coo will improve a bit and maybe he won't, even if he doesn't, we've both learned we can manage things and we'll be ok!

So inspite of all the health stuff and hassles we're going to Blackpool as planned well or not!


So Blackpool here we come...











We'll wander along the beach and eat ice-cream, do you think that's a bit optomistic for Blackpool in June? LOL

Maybe we'd do better packing some wellies and an umbrella!


No way!
It wouldn't dare rain on our parade - and if it does so what, we'll hide away in the tower!!

Happy days,

Maz x

Sending Rainbow's...

Hi all!

I always say about us Carers...

"We are all in the same boat so we each must take turns to paddle" - and it's true!

Must admit though, it seems like we've been paddling so hard over this last year and a bit, Coo and I, we could've been signed up as Olympic rowers!

Coo's still seizing pretty bad but not at an un-manageable level, the meds are still a bit of an issue though!
Gosh, it's weird how your perception of what you can cope with changes over time isn't it?

A few years back, I'd have said 10 seizures a week was too hot to handle but with all the crazy activity this last year, when it shot upto 30 a day, it's now a case of 10 seizes a day? that's...

Easy peasy lemon squeezy...well not quite, but you know what I mean!

I feel the sunshine is real nice but I guess you need some rain in your life too!





Please God keep sending me some rainbows!





*****Here's to rainbows for us all!*****

maz x