Follow by Email

Sunday, 13 April 2014

Carers, Sleep,Seizures and Support...

Hi guys, it's been a difficult week.
I'm afraid we are both struggling!
Coo's broken foot still remains problematic and to cap it all, he has an increase in seizures yet again. There's been little in the way of rest here, it's all been a bit difficult. I phoned our doctor and arranged for some blood tests so we can at least check what the drug levels are like. Maybe this will shed some light on things or maybe he'll develop a cold - who knows, it's one of those, sit it out and wait and see kind of things!

I'm digging out my hard-hat and flak jacket again!
I'm really feeling it this week, I'm tired, feeling a bit low and I seem to have developed some swollen glands - joy - I hate being ill! I always say I don't have the time and just carry on regardless  and truth be told...I'm a bit of a rubbish patient too! lol 
I think most Carers are probably the same, we're used to being on the other side of the caring equation and a bout of illness ourselves? well, is just not part of the plan and definitely not cricket! lol
I'll keep up with the 'take plenty hot fluids' advice, leave things a few days and just see if the pesky glands go down by themselves and if not? I'll cross that bridge when I come to it!
One thing's for sure, I'm so glad for our SDS (Self Directed Support) care package.
It means I can have some much needed rest - tonight is a sleep night for me and I can't wait! God alone knows how I coped when I was poorly before! Everything was so much more difficult to cope with and I sure don't want to be in that position again! When things are at their most difficult and not going well, having proper support in place makes all the difference in the world.

It's the difference between having a sense of struggle and drowning, to coping and surviving!

Sleep is such a small, normal, everyday thing but the lack of it, can be so very devastating and Carers feel and know this more than most! I'm so grateful I now have some proper rest, I only wish more Carers had the same - God willing!

Keep strong friends
Maz x


Retro Wren said...

My goodness! Someone else who lives like me!
So lovely to read your blog. Bless you. :)

My eldest daughter has epilepsy. Seizures every day and night. It is hard.

Take care dear lady. Bless you all.

Maz said...

Hi there and thanks for popping by! You are right it is hard!
You take care of you too.
Happy Easter and...wee(((hugs)))sent your way Maz x