new hope....maybe!

Hi Guys, guess what?

I saw another ortho surgeon at last!
He thinks he can help me with this darned shoulder and I'm so relieved, it was starting to get REALLY painful!

The surgeon said he will see me sooner rather than later too so that's a bit of a bonus!

Since I last posted, I've been away for some respite.
My mum and I went to Blackpool and it was great!

We stayed at the Royal Seabank Hotel on the front.
The meals were tasty, the room pretty and the people friendly.

Best of all we got Tram ride tickets thown in for FREE! LOL









We jumped on a tram out to St. Annes and walked along the prom till we found a...Tea Shop so I did get to eat those cream cakes after all! LOL

The best thing was...
Being able to sleep for 4 whole nights in a row...

B-L-I-S-S!













I can't believe it's a whole year since I was last away for a break!

Coo wasn't too poorly while I was away so that was really good but you know how it is, unless I heard his voice each day, I couldn't settle so I called him right after breakfast each day, had a wee chat and then enjoyed what the rest of the day had to offer!

I'm so glad we have a system that works!
Our Direct Payment really let's me be free once in a while and I sooo appreciate it!
Makes me wonder how I cope without it...it wasn't easy that's for sure!

I think it helps that it's our daughter Looby who is our P.A. (personal assistant) as when I get some time away, I know Coo is in good hands and I can switch off for a bit!

Coo's seizures are still pretty bad, he's currently having around 10 during the night and 2 or 3 during his daytime nap.
Things seem to have kinda settled into a pattern now so at least we know what we're dealing with.

I must admit though, poor Coo feels like a pin-cushion with all the blood tests, they're every 2 weeks now with no sign of letting up.
I suppose the up side is with all the careful monitoring, we've avoided the hospital admissions this year wooo oooo!

I guess everything is a trade off isn't it?
New meds mean more checks and side effects too so if you're any better or even break even it's a plus.

Well that's how Coo and I now see it.
I must admit though, we always keep our hard hats and flap jackets at-the-ready just in case!LOL

I hope things are fairly settled where you are!

Love
maz x

Cream cake eating?....not yet!!!

Well, I still haven't managed to get out and kick-up those leaves and more to the point...EAT those cream buns yet!

Things have been a bit difficult!

Coo's not been the best as the change in weather has upset him...again and to cap it all...we had the house rewired on Monday - what a mess!

Poor Coo, got landed with moving the heavy stuff as my shoulder is still a problem (another story me thinks!) so I felt about as useful as a chocolate tea-pot really.
I must admit though,I still excelled in the tea-making & choccy biccy department!

The results of our rewiring job??

Mostly, wires, holes, lumps and bumps...everywhere!

MEN AT WORK - what can I say!!LOL


Thank Goodness it's all over, the only problem now is the clear up.

Where the heck are Kim & Aggie when you need them? lol
Not that we're that bad! but I wouldn't mind some tips from those two as rewiring sure is a dusty job! LOL

I think things on the domestic front will get back to something resembling normal, (well normal for us anyway) soon-ish!

For the moment, I'll need to just dream of walks in the park and cream cake eating, more's the pity!

Never mind, I'm sure we'll make it out this week!

To keep us going?



A flowery cake - Mm Mm, I can taste it now! LOL

Take care,
maz x

Summers gone...

Well, the Summer has gone - if it ever was truly here in the first place!

I know I wore my rain jacket and wellies more than once and me thinks I was not alone in this! LOL

It's just as well, I quite like the Autumn time as I can feel it in the air already.



It's so nice to walk in the park and kick up the leaves - well when nobody's there anyway - otherwise they think you're nuts!



Speaking of nuts.... I just love...SQUIRRELS!!

When Coo is well, we sometimes go to Eglinton Park, it's crambed to bursting with wildlife and usually loads of squirrels scurrying around!

It's such a pretty place and so peaceful too.
When things are difficult, it always gives both Coo and I a lift.

It's the kind of place that makes you feel alive - oh and it helps...it has a coffee shop...mm mm!



Now don't they look tempting?


Come on you know you want one! LOL



Coo's got his bloods to get done tomorrow so if he's well enough maybe we'll go get one of them there cakes on Wednesday!

Here's hoping!

maz x

So disappointed...

I'm gutted!

I just came back from a hospital to see the Orthopedic Surgeon and it looks like he can't help me.
I have had pain in my shoulder for 3 years now.
The first year some hydrocortisone jabs kept it at bay but since then it's been real bad!

In a way it's a good thing my x-rays were normal but it's so painful all the time I'm really struggling now.
The Ortho say's without knowing what exactly the problem is, he doesn't want to 'open it up'.

Where does that leave me...

Well, he's going to refer me to his boss now and see what he thinks so I guess it's a case of just keep taking the pain killers and cranking up the TENS machine for now.

You know, with all this electricity running through my body all the time, it wouldn't surprise me if one of these days, I woke up with a curly perm LOL !



Ok, maybe the orange is stretching it a bit!!LOL



Coo's still struggling on.
His meds have been reduced as he was toxic so his seizures are up again.
He's worried about me too, which isn't helping things and to cap it all it's blooming raining again!

Hey-ho apart from all that we're both hunky-dory!

I'm reminded again of Granny, who always said...
It's a good life if you don't weary!




I think it could be lucky white heather time!


Keep thinking happy thoughs(or taking the pills)!
(((hugs)))
maz x

Well it did rain....

It rained and it rained and it rained! LOL

I'm glad in the end I did decide to put on my wellies after all!

You know something though?
All that rain didn't dampen the spirits, in the words of Wallace and Gromit, it was a grand day out!

It always amazes me how people less fortunate like our wee group, who are all addition/special needs, a bit of a motley crew with an assortment of disabilities! keep so cheerful.

It didn't really rain on our parade, well it did but a multi-coloured assortment of silly rain poncho's and wellie boots and a group with no particularly cares on fashion sense made for a FAB day out! LOL

I'm glad I pushed myself sore shoulder and all and went ahead with this as a dozen people who really deserve a good fun and free outing had a ball! LOL

We were rewarded in the end as in the afternoon the sun came out and we all got to sip cuppa's and coffees on the beach - what a blast!

Bags of chips all around and a ferry ride back home...Fun? it sure was!

maz x

Hey ho...

Hi Guys, how goes it?

Things are pretty much the same-o same-o here, Coo's still struggling with seizures but we're kinda resigned to the whole thing and now take each day as it comes!

My shoulder is still sore, even after the hospital visit but I'm hopeful they can do something with it so we'll say it's a work in progress!

Our summer seems to be over here!
All week we've had the wellies and rain jackets out but funnily enough it's still pretty mild, so we're counting our blessings - it could be worse you know!

Our wee club for special needs adults, is off on a day trip tomorrow to the Isle of Arran for the Brodick Highland Games and both Coo and I, are looking forward to the ferry trip as it's been ages since we visited the Islands!

Mind you, the weather forcast doesn't sound too promising but I'm sure it'll be great fun!




Only one thing now...where did I stick those wellies!

maz x

Hoping for sunshine...

Hi everyone!

Things have been a bit difficult for Coo recently, his meds are up and down like a yo-yo but we're still hanging on in there and paddling hard!

At last my appointment is nearing, so I'll be off to Hospital on Thursday to get that troublesome shoulder examined...ouch!

I've been lucky with the good old N.H.S.as it's only taken 3 months to secure an appointment and I'm quite relieved really as I'd been told it could take 6 - 9 months!

I must say, I'm not looking forward to going at all as each time I've visited my GP, he's reduced me to tears with his poking and prodding of it!

Incidently, what's your weather been like?

Here, it's been wet and windy!



June was the worst it's been in years.

I'm not at all sure about this Global Warming milarky as it's even colder and wetter here than ever!

Never mind, Let's hope for some sunshine soon.

Take care,

maz x