Caring easy?....Nooo sir-ee!

Hi guys, it's hard hat and flap-jacket time for us again!
We're back on the drug see-saw again - dose up and down trying to get some control!

Coo's Epanutin level (Anti Epilepsy Drug) has jumped from usually around the high end of safe at 80 to 108 for no apparent reason.
I'm not sure of anything that could have affected the levels as his white cells were fine so it's not infection this time. :?

I should have known there was a problem brewing as he's been a bit moody and his sleep pattern is shot to bits. Well, he sleeps a couple of hours at night and then on and off all day and with sleep seizures that's not a good set-up!

He's never really got back down to single figures since the last crisis and things have kinda stuck at around 12-15 seizures a day.

With this latest increase in activity, we've jumped back on that dreaded drug see-and cut back his dose in the hope things will settle a little bit.

Wish us luck,

Bob!
I'm gonna need to borrow that hat again !


I hope things are on a more even keel where you are!

maz x

Quail, to get or not to get...

Hi guys, you may have noticed the quail related links I've added recently, well...I've been thinking of getting some quail!

Coo's not keen and that's the only thing that has stopped me taking the plunge...yet!
I have a petark in the garden it's this one:

I bought it a few years ago as I had two rabbits who needed a bit more space and sadly, it's been lying empty for over a year.


Well, I painted it a tasty chocolate colour and got it all ready, researched(properly!) how to keep quail and found a breeder not too far away so I thought I was home and dry on the quail front but not so!

The usually mild and easy going Coo has kinda scuppered the plans as he doesn't want me to get them!
It's so unlike him as usually he's a pretty much go-with-the-flow kinda guy but he seems to be digging his heels in this time.

I've always loved animals and over the 25 years we've been married we've had an assorment of pets from fish and budgies to rabbits and reptiles and our old Jack Russell (she's 17 now and still going strong!)

I guess, spending a lot of time at home makes pet keeping appealing - well it does for me anyway! LOL

I'm still working on Coo but something tells me it's not going to be so easy!
I wonder what he has against these pretty little birds??


***Aren't the pretty?



I'm still hopefull of changing his mind - wish me luck!

maz x

Getting involved with Carers UK...

Hi guys!

I'm considering joining the committee of Carers Scotland the scottish section of CarersUK.
I recieved a letter from them with details on voting for their new committee and after speaking to a friend, I'm considering joining the committee myself!

I guess I got the bug from the:
Carers Poverty Protest March in April
- check me out in the tartan and hi-vis fashion ensemble! LOL

Then again...maybe it was the T.V. interview in June for Carers Week! LOL
Who knows but what I do know is...

If you speak out for what you believe in, you feel better about things and if anyone else listens well, that's just a bonus isn't it!

Upwards and onwards eh
We all gotta fight for those who can't!

As it says in my header...

'We are all in the same boat so we each must take turns to paddle!'

I guess, maybe, it's just my turn at the oars!

A feeling kinda militant, maz! LOL xx

Caring sure is a roller coaster ride...

Hi guys, we've been on that flaming roller-coaster again!

Who ever said the life of a Carer was an easy one? eh?

Well, thankfully Coo's calming down a bit now but the last two weeks have been a real roller coaster ride!

He's been poorly this week but last week he was well, pretty much awake a lot, so he had less seizures - bonus! LOL

We even managed a daytrip with our wee club to the 'Highland Games' in Brodick.


Honestly all those kilts...
my - oh- my!

Can you tell?

I had a b-r-i-l-l-i-a-n-t time! LOL


So we watched the strong men literally!

Then walked along the beach and ate cream teas...mmmm lovely!

It's a pity the weather wasn't so nice but you can't have everything can you!

Things did clear up a bit later on.

The ferry ride home was magic, still waters and sunshiney skies!

Aren't we lucky!
It's such a fantastic view!


I sure hope you've got some sunshiney weather where you are!

If not, at least some sunny thoughts,

Love
Maz x

where's the last week gone...

Where's the last week gone?
Same place as the sunshine I'm afraid....God knows but it 'aint here! lol
Seems like both Coo and I have lost this week totally - Coo's slept it away...again and me?? well,

I've just kinda been hanging on in there and trying to chill and ride it all out yahoo style!

INTERNET Wooo Hooo or should that be Yahoo!!
If it weren't for my broadband I'm sure I'd be bored to tears, climbing the walls or both! lol

After all, there's only so many repeats of Tenko, Kojak or anything else a la UKGold you can view, before you're head gets sore!

It's been too wet to potter in the garden so this week, it's been a...


...cleaning and moving stuff around kinda gig - boring!


Just couldn't resist this pic! lol




We did manage to get out to our wee club (the one we run on Monday nights for adults with disabilities) and that always raises a smile!

Special needs bingo is not the easiest to keep up with and usually consists of me weaving around the tables and yelling well done! you've got that one!
or even...
2 little ducks??? 22 where are my quackers! answered by a lound chorus of quack,quacks and peals of laughter.

Who wouldn't have fun!
Especially as there's always some tea and buns to finish Mmm...Mmm

Coo and I need to feel the sun on our faces so let's ask the weather fairy for some lovely sunshine this week....pretty please!

maz x

Well, the sun's back...

Hi guys, I'm glad to say after a weeks hard rain fall...the sun's out today!

I've been in the garden for a bit pottering around with plants and generally doing my charlie dimmock impression! lol

Coo's been poorly again, he sleeps most of the day and comes alive around tea-time.
It's been a bit of an adjustment again, what with seizures to cope with all night and then daytime too I'm feeling sleepy a lot!

I'm glad Looby's sleep over is soon!
It's on Saturday so I'm looking forward to a nights undisturbed sleep! BLISS!!

Anyways, enough of that and back to the gardening lark...

A few weeks ago I found a big packet of what could only be flower bulbs under the sink???
Well, what they were doing in there or how long they'd been there is anybody's guess but feeling kinda a guilty - it's only me who would have shoved them in there!, I decided to plant them and see if they'd grow!

...and grow they have! LOL

God know's what they are but they're getting pretty big and fat and have some pinkish flowers now appearing!


Result or what??

Now you've probably worked out I'm not usually the titchmarch type but I really have enjoyed pottering about in the garden this year!

It's thanks to the seizure alarms we now have, that I've managed to get out in the garden at all!
It's not so long ago I was shut in our room every time Coo was sleeping.

I'm not on commission - honest!
The alarms are brilliant.
I keep the handset with me and if Coo has a seizure it bleeps anywhere in the house or garden and I know he needs me.

They've given me a little bit of freedom back and that's not a little thing - it's hugely important!


It would be nice to have the sun back for a few days more.
I honestly think everything seems a bit brighter when the sun shines!



Let's hope for sunshine and smiles for us all!

Love,
maz x

where's the sun gone?

Ah well, I guess the bubble had to burst sometime - the sunshine's gone today and the rain is back with a vengeance!

I could have been doing with one of these outfits! lol

Well it was nice while it lasted and who knows maybe Mr Sunshine will be back! lol

Pardon the pun - every cloud has a silver lining and the upside is, Coo is feeling a bit better now the temperature has dipped a little so everyone's a winner on that front! LOL

Last nights wee club was brilliant, for those who don't know both Coo and I help run a wee group for adults with learning or physical disabilities.
Anyway, last night we had a colouring-in session and it was brilliant!

You forget how much FUN activities like that are when you've not done them for a while and it's great to have the excuse to step back in time for a bit and scribble away to your hearts content! LOL

First prize?? pick of the choccy biscuits and a medal - chocolate of course! lol

It is fun just to chill and switch off for a bit isn't it?
I guess it strengthens you up for the next on-slaught! LOL


I hope you've got your colouring pens and crayons at the ready where you are - go on you know you want to! LOL

Happy scribbling!

maz x