In a soapy bubble...

Hi Guys, most of you will know, with Coo being so poorly, I've been stuck at home a lot lately and I suppose that's just typical of the usual Carer lifestyle eh?

Well, I've decided there's no time like the present to begin getting organised and I've got around to ordering my soap supplies and some new chrismassy moulds! LOL

I enjoy soap making, I find it kinda therapeutic.
It's also a pleasant and better still quiet pass-time while Coo's asleep and I'm so very much at home so...jobs a good 'un! LOL

I've got some lovely gift bags, a load of tissue paper and some pretty gold labels so...
I'm going to make the wee soaps and pop 'em in as Christmas gifts.

Handmade is always nice to recieve isn't it!

Guess what?

***I think I'm gonna be...Soapy bubble busy! LOL


((((hugs)))
maz x

My Poem on Carer's ...

Hi Guys, I was trawling my P.C. hard-drive and came across some more of my poems so I decided to share...


‘The Carers Circle’

We care because we love.
We love because we care,
It’s as natural as breathing in freshest Air.
To love, hope and strive and continue to care.

This circle of caring, life, love and hope.
That’s what helps us continue and aids us to cope.
There’s another circle, it’s hopeless and bleak, a black hole.
It pulls down Carers, and so saddens their soul.

Some support is needed to help Carers through.
Please make sure they get it, it’s all up to you.
We can help with support and speak our mind.
For one day as Carers ourselves we may find.

By Maz

I honestly do feel, we Carers are living in a kind of circle at times.
I Wish we all had a huge circle of support too!


I hope you liked the poem!

Keep strong,
(hugs)))
Maz x

Carers need me time too...

Hi Guys,
I'm just like most Carers and we all know, there are times when you're kinda stuck and can't get out much and that's increasingly been the case for me recently!
It's so important to find some me time too!

Coo is still poorly with lot's of seizures and he's very sleepy too so I've spent a lot of time at home over the last few weeks.
I've been keeping myself busy with this lot...

...making some jam! Mmmmmm!

I found a really easy recipe to make jam using my breadmaker and it worked out just fine - well actually it worked out pretty much better than fine...it's yummy! LOL

I guess it helped, I had some lovely ripe brambles and plenty rhubarb growing in the garden to begin with so in between checking on Coo, I spent a happy hour fruit gathering and eating! before I even started to cook! lol


I'm really a bit of a novice but I must admit...
I'm kinda pleased with the results!
The jam tastes wonderful!
It's now all bottled up with a cute label and of course a bow and it looks really pretty too!



When I was a Carer at first, I used to kinda resent the times I was 'stuck' at home with Coo but now, I seem to have found so many ways to pass the time while Coo's asleep, that it doesn't bother me so much.
Being a Carer is a different lifestyle, well it is for me!
It's a lifestyle full of contradictions, from the sporadic times of high drama and tension of hospitals, ambulances and emergency admissions to the other end of the spectrum with a much slower pace and lot's of quiet time spent at home. I've learned to adjust and realised it's ok to be different, it's also ok to say...hold on and...slow down once in a while too!

Regardless of how much seizure activity during the night, I used to panic if the house wasn't tidy and we weren't up and dressed by a certain time in the morning but then I realised if you don't sleep much during the night bacause you're on the Carer night shift...it's ok to sleep in a little and start you're day a bit later, the world still turns without your input! LOL

I guess people don't really understand and unless you've spent some time caring you'd never realise there are so many people out there all caring, coping and generally just getting on with things as best they can even if it is a bit of a slower pace!

I think my rat-race days are well and truly over and if truth be told I don't really miss them much!
Manybe I'm just getting old - perish the thought!

Keep strong and sane oh and if you can make some jam! LOL
(((hugs)))
maz x

Carers keep going...

Hi guys, I wonder where our inner strength comes from?
We Carers just keep going don't we!
Come to think of it...I guess we don't really have much of a choice so maybe it's a Carer mind set!
What do you think?

I'm still trying to keep positive that things will improve, even a little bit and we'll catch a break but it's been real tough recently.

So how do I keep sane?

Well, I've developed ways to amuse myself while there's long periods of time enforced at home. From soap making to jewellery and crafts I kinda tootle with it! LOL
I've been trying my hand at loom weaving lately and it's pretty much relaxing!

I mean...my wee loom's not anything fancy, just a little frame one like this and some odd balls of wool but it's fun and yet another happy diversion when Coo's so poorly.

I'm still pottering in the garden - when our not so well behaved weather allows me! What a mixed-bag-kind-of-a-summer we've had this year...more rain soaked than sun soaked I'm afraid! lol

Never mind, September's supposed to be a bit better so maybe the sun will come out tomorrow although I'm not placing any bets! LOL

The main thing is we're both ok and I so hope you're doing ok where you are too!
Keep strong,

Love
maz x

Still struggling...

Hi Guys, the struggle continues I'm afraid.

I suppose that kinda sums it up for most Carers doesn't it.

Coo is still very poorly. Last night his seizures were every 15 - 20 minutes again and he's pretty beaten up - well, we both are really! His blood tests show his drug level is still up 'n' down on what we call the AED (anti epilepsy drug) see-saw so there's little sign of any improvement.

Luckily we have Looby to call on when I need a bit of a break and she's been brilliant moving things around to accomodate the current issues.
What a wee star!

New drugs are always a worry and I'm dreading futher problems with side effects as things are already pretty rocky for Coo as it is! I'm trying to be real calm, usually not a problem as nothing really fazes me...well not much anyway! LOL

So...I'm going to move onto more positive things!

Our weather here is as unpredictable as ever!
The sun has made another appearance after 12 days of rain! LOL

In fact it really has been brolly and wellies weather most of our summer this year! LOL Even our local church fete was washed out on Sunday - now how dare it rain on that - there's no justice is there! LOL

So as the sun co-operated and came back for a vist and Coo's seizure alarms were on, I did manage to sneak in the garden for a wee while! The veggies are still doing well - I guess the rain is good for something anyway, what is it they say? about clouds and silver linings! lol

Tonight, dinner will be baked potatoes and an assortment of fillings with some fresh side salad, drizzled with my favourite honey mustard dressing and best of all most of it came free of charge from the garden - cool or what!

I never thought I'd enjoy growing things so much...but I do!
It really is good for you and so is the fresh produce too! LOL

Let's hope for some sunnier times to come.
Take care,
maz x

Hard hat and flak jacket time...

Well, it's yet again been a very difficult week. It's what I call hard hat and flak jacket time!

Carers never have it easy do they?

Coo is poorly and it's been a very worrying time. His seizures have yet again sky-rocketed off the planet for no real reason and it's been so very difficult to manage.

During the daytime he is awake in the afternoons, he's pretty good and he's my lovely Coo but then he tires and falls sleep, well, then it's bedlam - seizure city and very hard on us both.

He's nursing muscle and limb pain and his poor cheeks and tongue are bitten to shreds! I'm clinging fast to hope that tomorrow's blood results will shed some light on what is happening and maybe find a little improvement.

Please God, send a rainbow to cheer things...


One like this would be nice!



Wish us luck!

I hope things are on a more even keel where you are!

Love,
maz x

Highland Games...

Hi guys!

All-in-all it's been a bit of a tough week!
Coo's still struggling with his meds but I think, thankfully things are settling, well a bit anyway! LOL

At this time of year, we usually take our wee disabled club to the local island's highland games and guess what?
The sun came back this weekend just in time - woo hoo!
All those strong men in kilts and...sunny weather too - result!
What do you think...
There sure is a distinctive appeal isn't there!

Anyways, it wasn't just the handsome kiltie men, it really was a lovely timeout kind of a day. Everyone enjoyed themselves, from the boat ride across on the ferry to tea and cream cakes in the pavilion and some chips on the beach on the way back, it really was a lovely day!

It does you good to spend some time with others who are in a some what worse position than yourself, kinda helps keep things in perspective and the kindness of others really does your heart good too!



So, just like Wallace and Gromit...
We sure had a grand day out!




I sure hope you've got some sunny weather where you are and if you're lucky...maybe even a kiltie man too! LOL

Wishful thinking!
maz x