Well, the sun's back...

Hi guys, I'm glad to say after a weeks hard rain fall...the sun's out today!

I've been in the garden for a bit pottering around with plants and generally doing my charlie dimmock impression! lol

Coo's been poorly again, he sleeps most of the day and comes alive around tea-time.
It's been a bit of an adjustment again, what with seizures to cope with all night and then daytime too I'm feeling sleepy a lot!

I'm glad Looby's sleep over is soon!
It's on Saturday so I'm looking forward to a nights undisturbed sleep! BLISS!!

Anyways, enough of that and back to the gardening lark...

A few weeks ago I found a big packet of what could only be flower bulbs under the sink???
Well, what they were doing in there or how long they'd been there is anybody's guess but feeling kinda a guilty - it's only me who would have shoved them in there!, I decided to plant them and see if they'd grow!

...and grow they have! LOL

God know's what they are but they're getting pretty big and fat and have some pinkish flowers now appearing!


Result or what??

Now you've probably worked out I'm not usually the titchmarch type but I really have enjoyed pottering about in the garden this year!

It's thanks to the seizure alarms we now have, that I've managed to get out in the garden at all!
It's not so long ago I was shut in our room every time Coo was sleeping.

I'm not on commission - honest!
The alarms are brilliant.
I keep the handset with me and if Coo has a seizure it bleeps anywhere in the house or garden and I know he needs me.

They've given me a little bit of freedom back and that's not a little thing - it's hugely important!


It would be nice to have the sun back for a few days more.
I honestly think everything seems a bit brighter when the sun shines!



Let's hope for sunshine and smiles for us all!

Love,
maz x

where's the sun gone?

Ah well, I guess the bubble had to burst sometime - the sunshine's gone today and the rain is back with a vengeance!

I could have been doing with one of these outfits! lol

Well it was nice while it lasted and who knows maybe Mr Sunshine will be back! lol

Pardon the pun - every cloud has a silver lining and the upside is, Coo is feeling a bit better now the temperature has dipped a little so everyone's a winner on that front! LOL

Last nights wee club was brilliant, for those who don't know both Coo and I help run a wee group for adults with learning or physical disabilities.
Anyway, last night we had a colouring-in session and it was brilliant!

You forget how much FUN activities like that are when you've not done them for a while and it's great to have the excuse to step back in time for a bit and scribble away to your hearts content! LOL

First prize?? pick of the choccy biscuits and a medal - chocolate of course! lol

It is fun just to chill and switch off for a bit isn't it?
I guess it strengthens you up for the next on-slaught! LOL


I hope you've got your colouring pens and crayons at the ready where you are - go on you know you want to! LOL

Happy scribbling!

maz x

Carers Week 2009...

Well, haven't I been busy!

lol Last year for Carers Week, I met with Scotland's health secretary Nicola Sturgeon, to try and raise Carers issues and this year well....I was on the...


Cool or what? LOL

The reporters came to our home to film on Tuesday and it was all edited and on the news for Friday night!

Coo wasn't well enough to be filmed but in any case he wouldn't have been keen, he's a bit quieter than me!

I only hope sharing my story helps other Carers push for better services and a bit of help.

Here's hoping,
maz x

Sunshiney Days...

Hi guys! I'm back from Blackpool


The Central Travelodge is fantastic!!

and the weather?
Well...it was fantastic too! LOL

It was sunny every day so we walked on the beach, ate ice-cream and generally chilled out and it was GREAT! lol


Just look at the view from our room!

Cool or what!




We giggled like kids and had a real fun time and we both feel a benefit from that as Coo has been really poorly and we've both been stressed lately.

Anyways, another bonus...Coo wasn't too bad while we were away, mind you he was falling asleep by 8 o'clock every night - must have been the sea air!

We're pretty much shattered with the travelling but it sure was fun.

I'm so glad the sun stuck around as everything seems so much brighter when the sun shines doesn't it!

Of course, no visit to Blackpool is complete without a hurl on the trams! lol

We sure had fun!

maz x

stormy times...

Hi guys!

Things have been a bit on the rough side this last week I'm afraid as Coo is poorly... yet again!

Looby's been nursing a cold for over 2 weeks and poor Coo has succumbed to the dreaded germs and being Coo, things have been pretty bleak!

It's seizure city again and to cap it all our G.P. gave him some pain killers which have not agreed with him! AAAAAArrggggg!
So, I've had to do my Nurse Nancy bit again! lol
The last 48 hours have consisted of alternating bouts of seizures and screaming matches - honestly I needed to dig deep for patience as round the clock seizures and mood swings are, well...just a tad wearing! lol

Thank goodness the dreaded pain relief - which we won't be using again, is now leaving his sytem slowly but surely - horray, thank the lord for that!

He still has a cough and a temperature but he's returning to his usual sunny self!

Poor Coo, any infection at all now seems to flip things right off the planet.

Thank goodness he's improving as on Monday we're getting ready to travelodge it in Blackpool!
I was beginning to think it'd need to be cancelled but surely God would not be that cruel to us - we so need a break!

I guess I'll be thankful for the improvement and say a wee prayer it continues!

Next week Blackpool has to have ice-cream eating weather as I've ordered it specially!
Wish us luck! lol


Now doesn't that look Fab?
I can almost taste it Mmmmmm! LOL





Sunny and settled times to you and yours,
love,
maz x

Parliament calls to Carers...

Hi guys!

You'll have noticed from the title I've had some more dealings with the parly!

Well, both Rob,(another Carer who really helped hugely, with the scottish end of the Poverty Protest) and myself have been invited to meet with MSP's in June.
I'm just glad they seem to be listening and hope something positive comes out of it!

Unfortunately, I've had to decline this time as it's in the same week I've booked for Coo and I to travelodge-it at Blackpool - typical!

While it would have been nice to hob-nob at the parly, it'll be even nicer still if the sun shines for Coo and I at Blackpool!

Speaking of sunshine, would you beleive it?
It hasn't rained here for 4 whole days...
Now that is a record!


After 6 weeks of rainy days...
we think we're in the Bahamas!! lol


Back to the parly and the protest issues...

I'm pretty sure there'll be other times to fight the good fight so this time I'm being a bit selfish as a wee break away - and not of the choccy biscuit variety! is really more needed.
Come to think of it - we could do with some chocolate too! lol

Anyways, I hope the sun's shinning where you are and things are being kind to you and yours,

maz x

Carers find their voice...

The march was a blast...not that you should use that word regarding a parliament visit - but it was! LOL

We left from the coast at 10 o'clock and arrived in at edinburgh at quarter past twelve.
The weather behaved, I'm so glad the sun came out as it made the march much more enjoyable!

Here's some pics...you can't miss me!
I'm the one in the eye-catching fashion combo...
Red Tartan and hi-vis yellow vest,




Making our way down the 'Royal Mile'





Well, I guess I was visible! LOL



Let's hope our government listens...






We are now officially youtube stars!LOL

Carers Speak

April 22nd is a date we now know,
That Carers took action and to Parliament did go!
Well Carers at last decided to speak.
To tell of their issues and the help they seek.

From all corners of the land,
They were at Parliament as planned.
It’s so sad they needed to take to the street.
To plead and inform all they could meet.

The question is will our government take heed,
of struggling Carers stressed and in need.
Who knows, we will see.
What will be will be,
but surely someone will help with this burden of theirs.
After all, dear Lord, there must be at least one who cares!

It’s a long hard fight and we’ll struggle on through.
Please remember Carers for it so could be you.

Maz x