Respite...

I've been away for a few days respite to...Blackpool and it was FUN!

The famous lights are still sparkling and the weather behaved for a change.



My mum went with me, we drank hot chocolate ate warm doughnuts and shopped till we dropped!!

Using our Direct Payment meant our daughter Looby moved in to look after Coo while I was away. They both coped pretty well so all in all it was a stress free break for me.

I feel really good for having a few nights sleep all together for a change and my breakfast made for me!

We visited the Tower, went right up to the top!
Saw fish in the aquarium, caught the circus show, ate cornetto's and had some tea in the famous ballroom and all for 15 quid entry!!

Visiting the Blackpool lights sure was brilliant fun!

maz x

This time...

We got our Flu jab's done yesterday and so far so good, Coo seems to be ok, well no worse than usual anyway!

We're both a bit sleepy today although I'm not sure if that's down to things in general catching up with us or the Flu jab, who knows!

At least it's over and done with.

I've had some special hot chocolate, made with camomile and honey in the cupboard waiting for an occasion when I needed a pick-me-up warming hug and tonights the night!

Let's hope it lives up to expectation, I'll let you know!!

maz x

Not this time...

Hi Guys!


Well, after all the hassles to set up Flu jabs for both of us today...
they didn't happen!


Coo had a bit of a cough again yesterday and was up seizing most of the night so we decided, it would be best to wait another week in case of any further complications.

So we got it all to go through again next Wednesday...what joy!

Never mind, I'm sure it'll be fine in the end!

maz x

Busy week...

Well, I've been busy!!

Thankfully, Coo seems to be over the worst of his viral infection so things are a little bit more settled for the minute anyway, he's still seizing pretty bad but it's cope-able!

My training for benefits advice? well it's all done and dusted!
I've filled a few D.L.A. forms in for some people already so I think I'm going to be busy!

I also managed a day out with the Carers too!

On Tuesday, 14 Carers went across on the ferry to Arran, it was gorgeous, the weather held out and the sail was a treat!

While on Arran, I got to visit -Arran Aromatics... They make lovely soaps and perfumes and they've got a viewing window in the shop area so you can see just how soap is made - Cool or what? LOL

The cheese factory sit's right next door so of course we had to go 'sampling!'

I never knew you could get so many different kinds of cheese, there were an array of smells and colours to pick from!

I tried a chilli and a garlic one with a real smokey flavour to it and very nice it was too although I drew the line at one cheese called the 'Stinking Bishop' I think that's taking things just a touch too far!!

After all that cheese, where do you think we went next....?

Arran Distillary!
The whiskey place and before we go any further, I'll admit I don't touch alcohol as, to be honest, I've never really liked the taste much.

The tour was brilliant, if a little sniffy at times although the others who do take a wee taste on occasion assured me the place smelled BRILLIANT!
I must admit I was really impressed about the whole thing, it's really interesting all the processes that need to be done to get a bottle of whiskey, I would never have guessed how complicated it was!

After the tour everyone got a taste of a few of what my granny calls the 'nippy sweetie' itself, a 12 year old malt and some blended ones. I had a tiny taste on my lips but I guess it's just not for me but it sure was fun finding out how it was made!
Without our Direct Payment I'd never have been able to go at all and would have missed all the fun!

All that excitement this week and back to reality with a bump:

It's Flu Jab time!

maz x

Coughs and Sneezes!

Coughs & sneezes spread deseases...well aint that the truth!

It's not even winter yet and Coo's picked up a viral infection.
The seizures are through the roof yet again but I'm hopeful things will settle sooner rather than later this time!

News:
I'm going training again, this time sessions on welfare rights.
I know it's a struggle and more work but it keeps my brain ticking over and stops me getting bogged down with our own issues.

I'm off for the first session today so we'll see how it goes.

maz x

Coo Houdini!

Well the last few days have been pretty eventful!

Coo's seizure activity is pretty high at the minute with 12 - 15 a day so it's pretty hard going, anyway, over the last few nights, he's managed to get out our bedroom before I could stop him, an escape Harry Houdini himself would be proud of!!

I can honestly say skydiving downstairs at three in the morning is not to be recommended!

Luckily he's not hurt himself but it's still pretty hairy-scary, at times!

I will try to speak to our O.T. again hopefully she's come up with something to help.

maz x

A Carer day out...

Well, thank goodness Looby stayed over last night!
All those seizures over the last few days were beginning to take a toll and I've been feeling a bit stretched the last few days.

I got a sleep last night and thankfully things are a bit brighter.

I've got a day out planned tomorrow with my local Carers Centre, I'm off to Loch Lomond shores, with 12 other Carers!
It's a long way on the coach but it's usually a fun time away!

I've come to the conclusion, days out on my own are rare as pearls and the 'Direct Payment' that enables me to pay for Looby to sit with Coo has really opened up new areas for me, previously I just wouldn't have been able to go at all!

A minor miracle - a service that truely works!!

maz x