The new drug see-saw...

Well, we began putting the new drug in 2 weeks ago and so far we've avoided all the major nasty side-effects - thankfully no crazy 'hissy-fits' to report...yet!

On Tuesday, it went up to the high dose of 1000mgs a day but Coo's been having some problems since.
He sleeps around the clock and does not have any energy to go out etc.
He's also lost his appetite which is not so bad if your 18-20 stone but not good if your only around 10 stone to begin with!

The new drug was not supposed to re-act with any of his other meds but I think it has!
His drug level for the other epilepsy med, is now through the roof.
The safe dose is between 40 and 80 and today the reading is 109 - it's never been so high before!!

So, guess what??

We've begun the dreaded sea-saw effect yet again today!

Here we go!

Up 'n' down and up 'n' down!

We're reducing one med for two weeks and then we'll check the bloods again and plan some action!!

Nothings ever easy is it?

I hope life's treating you kind where you are!

maz x

Anyone for Daffodils? ...

Well, the Daffodil Tea went of well!

Around 30 children painted eggs and a selection of bits and bobs decorated some Easter bonnets too!



The Tea and Scones went down a treat and the local groups made some much needed funds to keep them going.




I did enjoy the day although I didn't see too much of it.



I was in the small studio offering Reiki & Massage therapies.

It really was a stress free, fun day!



Healing thoughts sent your way.

maz x

A new medicine...

Hi all, we same Coo's Neurologist today and he's asked him to think about trying a new drug, only problem is it's got some real nasty side-effects.
psychosis, nausea, anxiety & aggresion to name a few!

I've said to Coo it must be his decision but I confess, I'm feeling very wary.

Each time Coo's added another AED (anti epilepsy drug), we've had 2 or 3 months of hell while his body adjusts to it, then major side effects for a few months with no real improvements finished off with a further 2 or 3 months of hell to wean back off!

I'm trying to be positive but I'm not at all looking forward to the coming months ahead.




I hope things are in a sunnier place where you are and I hope too for sunnier days soon.



Who know's maybe this will be the one!

maz x

Daffodil tea....one lump or two!

How do I get into these kinda things?

I've been roped into hosting a daffodil tea in our local community centre and I'm not really sure what actually happens at one so it'll be Daffy-tea with a twist!

I guess things will be ok - I've asked they craft groups who meet in the centre if they will set up some stalls on the day so there'll be plenty of people milling around and things to buy and the local Cafe will provide tea and buns.

Only one other thing to sort out...a teddy bears picnic for 50 pre-schoolers.


Well, somebody's got to do it and the kids will have a ball!

I can sense a magician, some kiddie music and loads of sticky wee fingers coming on, only one thing for it...

Pass me another jam sandwich!

maz x

Movie Star...Me!

Where to start?

Well, it's been a busy week!

I was asked if I would consent to being filmed this week as part of my job and it's been a bit more than I first thought!

I work for my Local Authority as a support worker out in the community and as usual it's time to evaluate everything to see what is deemed a valuable service...

So this week was the week that was!!

Two Camera men showed up and followed me around for a bit on Thursday.




***** I think not!! *****







I'm not sure what they'll eventually put out but so long as the boss is pleased and I don't look like...



Cruella De Vil!


I'm sure it'll be fine or should I say...


'it'll be alright on the night' LOL!



On the other end of things - I'm glad I had another focus this week as Coo is poorly yet again.
we've had 3 couses of anti-biotics since Christmas and we're on the dreaded anti-bio merry-go-round once more!

Thank goodness it's a Looby night tonight as I sure need the sleep!

maz x

The Sun makes an appearance...

Hi all, the sun has come back for a bit and lifted the grey-day moods!

I think everyone's spirits have been lifted a little and people certainly do smile more!


Out came the winter sun so today was the day!
We eventually, decided to sort out the chaos that used to be our old rickety garage

The rain stayed off long enough to let us get most of the debris sorted so that was a bonus as we were not looking forward to the big garden clear-up! Can you tell? we're not really outdoor types!!
Thanks to the wee bit sun it wasn't too bad.

Coo's been poorly yet again, his drug level fell well below the safe level and his bloods on Tuesday showed an increase in white cells so we're on yet another antibiotic run!

It seems like we just kinda lurch from one crisis to another.

On a positive note, Coo quite enjoyed pottering around the garden and banging about with his hammer!
When I asked him what he was doing, he said he's decided to build a new fence by recycling the wood he's saved!

Well, Ground Force he 'aint but we'll see, with a bit of luck it'll only be a passing fancy...let's hope so!

maz x

Winter wonderland of January...

If we didn't need reminding...Winter is definately still here!

This is the worst January I can ever remember!


Snow, hail stones and gale force winds have been hitting us all day today and by the look of things, it isn't letting up anytime soon!

I went out to put some paperwork into the office, went to open the cardoor and almost had my hand wrenched off!
The wind caught the door and pulled it from my hand and there was nothing I could do to stop it.

I came back out of work half an hour later to discover the door is now warped and letting in water so lucky me, I got to travel in a not so comfortable wet seat all the way back home!!

I hope it doesn't cost too much to get it fixed, Coo and his Dad are presently... assessing the situation is probably the best way to put it!

Typical, their first response was - couldn't you hold it?

Only one answer to that and it's not printable, so I'll just say they got the picture er.....No!!!!

So far we've lost our rickety garage a garden fence and my rabbit hutch 'aint looking too pretty either!

Roll on the better weather and soon!

maz x