Carers find their voice...

The march was a blast...not that you should use that word regarding a parliament visit - but it was! LOL

We left from the coast at 10 o'clock and arrived in at edinburgh at quarter past twelve.
The weather behaved, I'm so glad the sun came out as it made the march much more enjoyable!

Here's some pics...you can't miss me!
I'm the one in the eye-catching fashion combo...
Red Tartan and hi-vis yellow vest,




Making our way down the 'Royal Mile'





Well, I guess I was visible! LOL



Let's hope our government listens...






We are now officially youtube stars!LOL

Carers Speak

April 22nd is a date we now know,
That Carers took action and to Parliament did go!
Well Carers at last decided to speak.
To tell of their issues and the help they seek.

From all corners of the land,
They were at Parliament as planned.
It’s so sad they needed to take to the street.
To plead and inform all they could meet.

The question is will our government take heed,
of struggling Carers stressed and in need.
Who knows, we will see.
What will be will be,
but surely someone will help with this burden of theirs.
After all, dear Lord, there must be at least one who cares!

It’s a long hard fight and we’ll struggle on through.
Please remember Carers for it so could be you.

Maz x

Carers and the Parliament...

Hi guys!

My Carer group are gearing up for the visit to the Parliament.

Today we were making up our banners so everyone will know who we are - we're a shy lot really! LOL

Our own MSP (Irene Oldfather), won't be there on the day as she is in Brussells but we've found another one to step in and meet with us on the day so we'll be fine.

It was a bit of a panic though as without an MSP, people can't get any further than the foyer area so I'm glad we found someone else willing to lend a hand!

Well, our bus is booked and we found a driver willing to take us up to the capital so we are all set.

I am saying a few words and reading my poem.

I'm getting a wee bit jittery about speaking at the parliament but I'm ok...I'm sure it'll all be fine once I get going!LOL

The press and the T.V. people have agreed to cover the day in both Edinburgh and London so watch out on the news! maybe you'll see us all!

Incidently, we will be wearing tartan and our banners all say North Ayrshire, Three Towns Carers.

Good Luck to all who are marching and speaking out, we'll do it for those others who just can't get there themselves!
Wish us luck!

maz x

Back on the up...

Hi guys!
Coo's antibiotics are all finished and he seems to be back on the up thank goodness.
The seizures are still here but they're manageable so that's a bit of a bonus too.

I know for most Carers, one holiday period is pretty much the same as another.
Sometimes it can seem like just another day but I do hope you manage to enjoy Easter and at least pig out on some chocolate - I know I will! lol

In fact I've been rather naughty this year - I went to Thorntons
I could not resist one of their Easter eggs!

It was a chocolate and toffee one and the samples were...FAB!
I asked the lady to put both our names on it and if Coo plays his cards right, I just might share! LOL

I'm hopeful we'll get out for a bit over the weekend and guess what?

The sun's out too...woo hoo result!

Let's hope it lasts well at least till Sunday!

Happy Easter Chicks,

maz x

Back in antibio-land...

Hi guys,
It's hard hat and flap jacket time again!
Coo's back in antibio-land.
We've avoided the dreaded antibiotics for 3 months this time but they've caught up again.
Here was me thinking the latest hassles Coo's experiencing were the last AED (anti epilepsy drug) kicking about his system but no - it's another infection.

It just shows how easy it can be to pin the blame on the wrong thing!
Never mind, at least now he should start to pick up.


I'm glad the sun's come out today as it always makes things feel a bit more positive!
I'm still hopeful we'll get out to the park at some stage this week so let's hope the nice weather lasts for a bit!

Sunshiney thoughts!

maz x

To sleep or not to sleep...

Hi guys,

The dregs of Coos latest trial with new pills are still kicking about his system, well I think they are anyway!
He still has difficulty sleeping so he seizes practically non-stop from around midnight till 3-ish and pings awake at 4 in the morning!

That's bad enough but he's then shattered by lunch time and in need of more sleep - so the cycle continues.


Honestly I don't know about him but I'm starting to feel like Zebedee - remember him?
Bouncing up-n-down all the time.


Come to think of it, it's probably a pretty fair assessment.
I guess we do, pretty much have, a 'zebedee' lifestyle! lol
I'm just glad there's usually as many ups as there are downs!

Anyways, enough of that...

Bargain City!

My cheap as chips Travelodge visits are still on a roll! LOL

In January we visited Glasgow for a few days to celebrate Coo's birthday and it was great.
We did the museums and a little shopping ;-) and chilled out for a bit!

Well this time, I've mananged to get another cheapy deal for a few days away in June to...Blackpool yeh!!
It's central as it's based in Talbot Road, just around the corner from the tower and at ₤19.00 a night for a room, well, you can't beat it! LOL

Mmmm, wonder where we'll end up next!

maz x

Carers? we will Survive yeh yeh...

Hi guys!

Looby couldn't make it last night, she had to work her other job (in a local care home) at short notice so no sleep for me last night...1-2-3 awwwww!
In the words of Gloria Gaynor I will survive!lol

As one door closes another one opens right enough!

Enter Scooby (our son) he's recently taken up golf so he's taken Coo out to the driving range for a bit and me....well I curled up had a sleep and read a bit of my book so job's a good 'un!

I'm so glad we've family who will lend a hand and in a practical way!

No doubt Coo will come back shattered and most probably sleep the rest of the day but hey it'll have been worth it, fresh air, the sun on his face and a bit of exercise can only help!

Our two kids have grown now and however much you try to shield them from the disabilities and issues when they're little, it's impossible to totally cushion them.
Considering even with the usual teen hassles they've both grown into caring people, maybe that's not such a bad thing after all!

Looking back now, what is it they say - hind sight is always 20/20 vision, I think all that angst and guilt I felt while tied up caring for Coo, was probably a waste of time and I bet lot's of other Carers have unnecessarily taken that guilt trip.

They turned out just fine so in the midst of us muddleing along we must have got something right - thank God for that! LOL

This pic gave me a giggle!



Isn't it so much more brighter and positive when the sun pays a visit!





Happy thoughts,
Love,
maz x

On the up...

Hi guys!

I think Coo's back on the up!
The last two weeks have been a bit of a challenge - maybe the best way to put it! lol

The new drug did not work.
It's now slowly leaving his system and thankfully I'm getting my Coo back again.
Epilepsy drugs are always a bit of a trial and error process, sometimes you gain and unfortunately sometimes you just don't.
The trouble is, if you don't try 'em you'll never know if they'd have been 'the one'.

Yes! Coo's definately on the way up again!

Last week, he couldn't concentrate long enough to string a sentence together and could have banged his favourite guitar on the floor and danced on it and this week...

sweet music or not so sweet depending your taste! - is back! LOL

I'm so releived as when any meds are either going in or out of his system, it can be such a worry, all the side effects and adjustments and then if they don't work all the frustration and hassles of then dumping the drug too.

I'm happy things are settling and even the weather is a bit brighter today so that's a bonus too!
If it lasts, maybe we'll get out to the park tomorrow and go squirrel spotting and of course...cream cake eating too! LOL

So all together...

Sunshine, lollypops and rainbows - you know you wanna sing! LOL


maz x